"Autistic Love" and the "Science of Kindology"

(A Deep Thinker?)

This blog post illustrates many of the factors in my mind when I attempt successful reciprocal social communication with other people online, in what I describe as a "type" of online "Autistic Reciprocal Social Communication".

Otherwise known as an effort to speak, attempt to provide communication others will listen to, and if one hits the "jackpot" someone might interact and provide a "human" connection. To be clear the person I am speaking to in the thread referenced below I shared, communicates well; it is me with the challenge not them.
 
The phrase “Autistic Love" and the "Science of Kindology” are metaphors of phrase I use to describe "Autism and the Science of Online Reciprocal Social Communication".

Creating metaphors in symbolic form is much easier for me than to concisely describe them.
 
The way my mind works, the meaning often comes after the symbol of word is created in my mind and transferred to a visual medium that I can more fully observe, through time, to adequately describe that meaning in words in a way that other people might be able to understand, most ironically, including me. That includes common words I have seen somewhere else in writing.

It is almost impossible for me to explain how I know the metaphorical meaning without having the words to describe it to myself; because there is no combination of words, I can find adequately describing that cognitive awareness.

That “unusual” “mindful awareness” I personally “think” has something to do with “Hyperlexia”, in coding the symbols of the world differently than other people do without that challenge in “output” of social communication.

Here is the link to a discussion of anonymous individuals on the internet, which inspired the comment below that describes this process of “mindful awareness”.

http://www.wrongplanet.net/postt230745.html

It is a description of what is happening in real time, after the words hit the visual interface in an internal cognitive process of awareness in words of what I am actually writing to achieve reciprocal social communication. 


Here is the comment:

First, just a note that it took me a very long time to figure out is that if one just provides the full URL the system of commenting on this website will automatically format it into a link people can click.  I personally like full links because I want to know the actual address of where I am going in advance. :)
 
Your initial link is provided below in "clickable" form, as the one with miscellaneous provided by [name redacted], found on Google, who by the way has offered me valuable advice in the past (Google and [name redacted]), is not the best starting point.

I suggest you edit your initial post to provide the "clickable" form of your link below to get greater feedback.

http://autismspectrumexplained.weebly.com

We live in a Twitter world now, where any effort is not likely to happen without brevity of comment and/or adequate intellectual, sensory and/or emotional stimulation for focus. Copying and pasting a link is beyond what most people are willing to do to pursue information. Your link was worth copying and pasting to me.

Additionally, many people are not willing to pursue comments more than a few lines long. Paragraphs of more than four lines and posts of longer than four paragraphs are often lost in the forest for people.

I liked your website. I would suggest not even addressing the ABA issue. It is the only therapy where there is a substantial body of research showing effective therapy for symptoms directly associated with Autism; however, the same research shows it does not work for many people on the spectrum. Those that find it works are going to be happy about it, overall, and those that don't find it to work are more likely to see it as relatively useless or harmful. This is five lines now. :)

You will find many viewpoints on this site, because the moderation team allows them. However, I would not focus greatly on viewpoints generated by organizations like [organization name redacted] and associated people that blog on the internet, because that organization and associates will censor comments that are in disagreement with the organization's ideologies, such as [other organization name redacted] is a bad organization. There were a couple of videos supported by the organization that were reasonably offensive; however, that is in the past. Ouch, six lines. :)

There is a substantial percentage of people on this site that do not support the stringent view that "cure" per remediation of the difficult challenges associated with autism is a bad thing.

The [name of organization redacted] and some people associated with that organization will censor out viewpoints like that, if the viewpoints include the word "cure".  Autism facts, Autism Politics/Ideological Controversies, and How I Experience What I Describe as an Autism Spectrum are all special interests of mine.

I suspect that you are a very fast reader, and may be able to wade through my lengthy comments and links at my site linked below where you may find something of use that you are welcome to use on your website. :)

http://katiemiaaghogday.blogspot.com/

I like your use of videos on your website. Recently I incorporated music and photographs my spouse and I take of nature, which has spiked my readership from what it was with my long "bland" "research paper-like comments", which I have to strive hard to avoid to effectively "emotionally" socially communicate with others, as that is my natural method of communication. 

Oops. I forgot to mention length of sentences as another detriment in modern communication.
 
No more than two line sentences are the best. It is very hard for me to do that. I found the communication on your site pleasurable and easy to read.

Brevity and emotion equals “Plus One (+1)”.

The body of research done on Asperger's IQ is limited, but it is overall assessed as slightly below the median of 100 at 98. Intellectual disability excludes one from being diagnosed, so overall one would expect it to be a little higher than 100, but it does not show up that way in larger studies done with people officially diagnosed. Studies on people with Asperger's selected from the college environment have been in the 120 range, but it is also a stereotype and myth that the majority of people with Asperger's Syndrome make it through college. Many are not likely "socially" communicating anywhere online. Seven lines: ouch, ouch, PAIN in the "Twitterverse". :)

The "Twitterverse" is a society wide phenomenon not an Autism Specific one. I guess I live in an "effective other" time and place. 

Seventeen paragraphs now - if you made it this far, perhaps you like bone-dry humor. :)

Humor is an effective tool to enhance memory in the learning process, when people understand and appreciate the humor. :) This is another "natural" roadblock for me, in effectively leaving a "lasting" impression in reciprocal social communication. However, I can analyze something to death in excruciating detail.
 
Oh, by the way, or OBTW for brevity and commonly shared urban slang, fear and the empathy of anger is also an "effective" tool to retain readership, which I do not usually employ.

The "Damn moral code" gets in the way. :)  Irony is a cool tool too, along with interesting patterns in words like three words with "two" "o's".

I personally like using quotes "too" (along with incidental and/or coincidental "acausal" connections in "principle" or "synchronicity") to accentuate "special" meaning in words, because I don't "feel" like I am YELLING at people to get their attention with all CAPS. :) After a while, "smiles" get boring; however, I am not good at picking out the complex icons for emotion. :(
 
"Bet" you never thought you would get that much feedback from one "entity". :) That is a mix of RRBI along with fine tuning reciprocal social communication, as "science of  kindology", rather than social instinct, as an "ideological first identity".  This "attribute", at times, can "remarkably" resemble "unusual" altruism, or what I describe as "Autistic Love".

If you are still reading at this point, you might be a "unique" human being. Perhaps, on a BAP broader autism phenotype yourself, as that statistical probability is much higher when one has a sibling on the diagnosed spectrum. :)

24 paragraphs, 11 happy faces, 2 links, and 1 sad face, finding myself now entering into "Co-morbid" territory from RRBI to OCD. "With that said", "goodbye and have a nice day" as an "Algorithm" of "small talk" to end a lengthy "monologue", with the end of one more smile to make the paragraphs "half full" instead of "half empty" with positive intent. :)
 
_________________

KATiE MiA
Kind Autistics Taking In Everything Mindful In Awareness

(:@@@:)
Autistic Love
And The Science of Kindology
An Ideological First Identity



Autism, the Internet and "Ideological First Identity", a Collection of Thoughts:

http://katiemiaaghogday.blogspot.com/2013/05/autism-internet-and-ideological-first.html

"AutisticS Peeks!"


It's Good
to Hear

ya
:)!
*

(:@@
@:)
!*


AS
P:
Autistic Spectrum
Perception

and

Perspective

"A Thousand Years"

by Christina Perri
http://www.youtube.com/watch?v=cdygEzfbhqc

...
Silent Lucidity

http://www.youtube.com/watch?v=jhat-xUQ6dw

by Queensryche


...
*



SEEin eLeVN

http://katiemiaaghogday.blogspot.com/2013/06/seein-eleven.html

...


Opened at
63013
12:01 AM
13528 Views
150 PostViews

...

TWELVE
twElve


http://katiemiaaghogday.blogspot.com/2013/06/twelve.html



A
Message...


...Language is A Universe of Expression...


It starts with Stars...


4 digits...



and a
Prehensile
Thumb...

People
Sketching
Angles In Sand...

Reflecting Stars In Sky...

http://www.youtube.com/watch?v=XGK84Poeynk

Symphony of Science
"We Are All Connected"

...

"All the World's a Stage"
...William Shakespeare...
Existing Eyes of Universe ONEALLNOWFOREVERMORE ll
http://katiemiaaghogday.blogspot.com/2013/07/existing-eyes-of-universe_3.html

http://www.youtube.com/watch?v=fbPxUxNtVR8

@@
@

Written in the Stone
by
Earth Wind
and

Fire!

AS Above!
Is
Below!
V
*
A
Hawk
Standing!
on
the
FEAT!
of PEACE!
http://www.youtube.com/watch?v=YwlsziopzmQ

Autism and the Nautilus

The
core
"challenge"

of Autism

and farther out

in

Broader Autism Phenotype

seems to be

a disconnect
of

Emotion
and Language.


At
core,

perhaps

Alexithymia

and Autism is one.


The drive

for

reciprocal

social communication

among
Social Animals

is so
strong,
 
 one cannot help

but think

that

Creativity


or

"Creation Activity"

in all
its forms

is

driven in
core

by
those
 
 who look to find
that connection

in Reciprocal
Social Communication
with
others

and

cannot

find
it

easily.
One
sees
that

"expressionless face"

of

reciprocal
social communication

in messages

of

"Creation Activity"

from

Poets, Writers,
Painters, Musicians,
Mechanics, Carpenters,
Architects, Software Engineers,


and anyone else


that spends
their life
in

Creation
Activity.


The End Result

is

everything
we see
around us,

"man-I-fest"

by the

Human
Species.


One

is

fascinated

by
patterns

in
Nature.


Among
one's
favorites

are

Nautilus
Shells,
Fetuses,
Hurricanes,
and Galaxies.


One's
School Logo
is a Nautilus Shell,

which by Synchronicity
 
 or

Coincidence

one was
born with
three at birth,

later graduating

with

three at twenty-three.
One also spent life
in a "Nautilus" Shell

in an attempt
to become stronger

aided by
that advantage

in Exercise
Technology,
 provided
by culture

for
some

who are

born weaker

than others are.


One's school

Motto,
 coming from

Oliver Wendell Holmes

and his poem about the Nautilus

is:
 
"Build Thee
More Stately Mansions"

                                                   

http://upload.wikimedia.org/wikipedia/commons/d/d5/Nautilus_Palau.JPG
 

It took one longer

to Build one

than most

but one started
here,

linked below,

in music

that has finally

become

words.


One note

led to

one note

led to

another

and
finally

a
structure

of
notes

became

one.


Years after,

there was a word,

a sentence, a paragraph,

and

finally


a

"Mansion"

that
continues
to
grow. It
appears

to one
now

that

the Human
Species

and all that comes from it

is "man-I-fest"

of when

"I"

becomes

more
fully aware


of "AM" that "IS".


Shell becomes ONE
with Nautilus.
One could not identify
an emotion

in one'sMusic,

but
one thinks one
finds
a word
to
describe
it.

Nautilus

http://www.youtube.com/watch?v=8SApGpWf2dg
Note:
Does not playback well on mobile devices,
but okay on desktops at low volume.

What
one perceives,

when
listening
to it,

is
a spiraling 

motion
of
notes

in
mind

that
has
no end

but
"One"


Link to Informal Poll and Discussion
on whether or not people on the spectrum
can relate to the Autism and Nautilus Metaphor
from the Wrong Planet website:

http://www.wrongplanet.net/postt229721.html


Another Place to find
"the Nautilus",
in

a "Duckyway". :)

http://katiemiaaghogday.blogspot.com/2013/05/autism-and-duckyway.html



The
song
"Closer to the Heart"
by
"Rush" ,

seems to

"Catch the Spirit"

of what
one
is

trying to communicate:

http://www.youtube.com/watch?v=quBCjo2rUZg

Autism, the Internet and "Ideological First Identity", a Collection of Thoughts:

http://katiemiaaghogday.blogspot.com/2013/05/autism-internet-and-ideological-first.html

  One's
Blog Post
that goes into
more detail

about one's experience
with Alexithymia
and Music,

is linked below:

http://katiemiaaghogday.blogspot.com/2013/03/challenging-alexithymia-with-music.html

"AutisticS Peeks!"


It's Good

to Hear

ya
:)!
*

(:@@
@:)
!*
AS
P:
Autistic Spectrum
Perception

and

Perspective



"A Thousand Years"

by Christina Perri
http://www.youtube.com/watch?v=cdygEzfbhqc

...

Silent Lucidity

http://www.youtube.com/watch?v=jhat-xUQ6dw

by Queensryche


...
*



SEEin eLeVN

http://katiemiaaghogday.blogspot.com/2013/06/seein-eleven.html

...

Opened at
63013
12:01 AM
13528 Views
150 PostViews

...

TWELVE
twElve


http://katiemiaaghogday.blogspot.com/2013/06/twelve.html



A
Message...


...Language is A Universe of Expression...


It starts with Stars...


4 digits...



and a
Prehensile
Thumb...

People
Sketching
Angles In Sand...

Reflecting Stars In Sky...

http://www.youtube.com/watch?v=XGK84Poeynk

Symphony of Science
"We Are All Connected"

...

"All the World's a Stage"
...William Shakespeare...
Existing Eyes of Universe ONEALLNOWFOREVERMORE ll
http://katiemiaaghogday.blogspot.com/2013/07/existing-eyes-of-universe_3.html

http://www.youtube.com/watch?v=fbPxUxNtVR8

@@
@

Written in the Stone
by
Earth Wind
and

Fire!

AS Above!
Is
Below!
V
*
A
Hawk
Standing!
on
the
FEAT!
of PEACE!
http://www.youtube.com/watch?v=YwlsziopzmQ

Update Part 2: Vaccines Not Associated With Autism

5/1/13:

Additional attempts to bridge understanding and knowledge on this overall issue of Vaccines and Autism:

From the Left Brain Right Brain website:

http://leftbrainrightbrain.co.uk/2013/04/30/andrew-wakefield-and-vaccine-safety/


From the Wrong Planet website:

http://www.wrongplanet.net/postt229492.html


From the Thinking Person's Guide to Autism Facebook Page:

https://www.facebook.com/thinkingpersonsguidetoautism/posts/530675340307131


Part two of Update on 4/21/03:

My last and likely final comment quoted below that was not published on the Left Brain Right Brain Website, LBRB, linked below, in the discussion there on the "Vaccine Controversies".

http://leftbrainrightbrain.co.uk/2013/04/17/andrew-wakefield-dont-try-to-blame-me-for-the-results-of-what-i-said-and-did/

It appears that Mr. Carey misunderstood my communication in thinking I was suggesting that Temple Grandin referred to the MMRV, in the NYT interview, when in actuality I was correcting a mistake in communication I had made earlier in the discussion. 

In addition, I provided further information in support of both acknowledgement of the warranted concerns of parents of children who fall ill to severe side effects of vaccines and potential unrelated illness, as well as evidence existing that supports the overall benefit of vaccines vs. the overall cost of potential rare severe side effects

Here is the comment that was not published, to this point in time, with some minor edits for reading clarity:

(4/22/13 Note: Matt Carey from LBRB, did approve this comment and clarified he had problems with the mobile version of his Wordpress Blog. :)

"For clarification and correction regarding my earlier statement in this discussion about the MMRV vaccine, it is approved by the FDA. It is the CDC, not the FDA that does not recommend the MMRV be administered before age four, per recent findings by the Kaiser Vaccine Center.

The CDC's recommendation, as linked below, is for separate vaccinations of MMR and the Varicella vaccine before the age of 48 months (4 yrs.), due to the doubled risk of severe fever and seizures that have been identified in studies of children under the age of two.

The CDC recommends the MMRV vaccine after age four if the MMR vaccine has not been administered separately before age 4.

The risk of severe fever and febrile seizure at age 2 and below is identified as a little over two in 3000, for the MMRV vaccine, as opposed to one in 3000, with the MMR vaccine alone.

Per the 2012 study linked below, from the Kaiser Vaccine Center, the risk drops to 1 in 15,500 at age 4 to 6 for the MMRV vaccine and 1 in 18,000 for the MMR plus Varicella Vaccine.

Temple Grandin may be making her personal risk assessment of recommendation for vaccination at age 5, and what she sees as her own personal list of vulnerabilities associated with ASD, based in part, on this information from the Kaiser Vaccine Center.

However, the danger of not being vaccinated before age 5 based on these numbers alone, which is the newest government reported statistics on risk and side effect of high fevers and febrile seizures associated with MMR and MMRV, definitely does not outweigh the overall risk of what is associated with contracting the actual diseases before age 5 if one is not vaccinated with the MMR or MMRV or MMR plus Varicella Vaccines.

Febrile Seizures alone are not studied as increasing the risk of Epilepsy or Brain damage in the general population.

However, as quoted below from the article that provided further details from the linked abstract, it is worth noting that the peak of the high fevers and febrile seizures occur at 18 months, and typically do not occur after age 5.

The time frame of 18 to 24 months is where the correlation, to date, per regression and timing of event of high fever and illness among children has been identified and reported by parents of a relatively small subgroup of children exhibiting symptoms of developmental regression shortly after these high fevers and/or other elements of illness reported by parents.

This data from the Kaiser Vaccine Center presents a strong case, by itself, of a factor of correlation rather than causation in these vaccine related serious side effects and developmental regression occurring in the same time frame, among a rare sub group of individuals on the spectrum.

http://www.ncbi.nlm.nih.gov/pubmed/22473362

"The researchers noted that febrile seizures typically occur in children ages 6 months to 5 years, and the incidence of these seizures peaks at about 18 months of age."

http://health.usnews.com/health-news/news/articles/2012/04/02/measles-vaccines-wont-raise-seizure-risk-in-young-kids-study

One of the other greatest factors of correlation that may rule out vaccines as an actual direct causal factor per developmental regression is that research has also determined that there is abnormal brain growth specific to males assessed with regressive Autism, which happens well before vaccinations are administered.

This abnormal brain growth is not significantly assessed in a group of females with regressive autism or other children diagnosed on the spectrum at the same age, in that study, linked below:

http://www.ucdmc.ucdavis.edu/publish/news/newsroom/5983

There was a presentation scheduled in the upcoming IMFAR, (International Meeting For Autism Research), in May, on the neuro-pathology of Cavum Septum Pellucidum and Cavum Vergae in Macrocephaly and Autism Spectrum Condition, that could have potentially shed additional light on this issue, but it appears that abstract has been withdrawn and may still be published in the future.

Cavum Septum Pellucidum and Cavum Vergae are already implicated in association in some co-morbid and inter-related genetic based disorders associated with the spectrum such as 22q11 deletion syndrome and Schizophrenia.

https://imfar.confex.com/imfar/2013/webprogram/Paper13947.html

I am a relative "nobody" on the internet, but based on all the evidenced facts that have been presented in this entire discussion, I personally recommend that children should be vaccinated according to CDC recommended vaccination schedule unless a medical doctor advises not to do so based on medical evidence of substantial risk of vulnerability, where the potential cost assessed may be advised as outweighing the potential benefit of vaccination, in rare instances where that determination is made by a qualified physician."


Update on 4/21/13 from my previous blog entry on this issue:

There is a very interesting discussion in the comments section of the Left Brain Right Brain, LBRB website, linked below, in a topic  where Matt Carey went through the historical element of this Vaccine Controversy along with the expression of disgust that exists among some people, associated with Andrew Wakefield and the recent outbreak of Measles in Europe.

There is good information in that discussion for anyone who may be considering Temple Grandin's recent recommendation on her website, in consideration of a delay in MMR vaccination to age 5, if there are familial vulnerabilities that Grandin identifies on her website, in what looks like a quote from her upcoming book, "The Autistic Brain". 

I support what I see as reasonable aspects of her concerns, in the comments section of the discussion linked below; however, in the discussion, I provide the evidence that I am able to locate and link, which still leans heavily toward the benefit of vaccines over the cost of potential rare side effects, even if some of the general vulnerabilities of neurology and health that Grandin identifies, exists per family history. 

My personal opinion that continues as it has been the same in the past, is that only a physician is qualified to determine what type of Health Vulnerability in each unique case is worthy of consideration on a decision whether or not to vaccinate. 

Where there is no health vulnerability assessed by a physician, all the available evidence that exists shows that the benefits of vaccination greatly outweigh the potential costs in risk of side effects that have been studied, identified, and assigned statistical risk in percentage, updated in 2012, as detailed in the discussion, linked below from the LBRB website.

I appreciate Matt Carey, allowing me to participate in the discussion, as a relative Layman on these issues, whereas some of the other individuals discussing the issue appear to have been focused on it for years. 

I do not share the same level of emotional investment that some of the other people in the comments express; however, on the other hand, I am not versed in the level of detail some others have by memory, so it is a research project for me in real time, where I stumble on some of the "vaccine related jargon" that I correct in my comments in the discussion.

In addition, Temple Grandin's website is linked below for those who wish to review the comment that I referenced from her, on that website.

(Edit on 4/28/13:  It appears that all Vaccination related advice has been removed from Temple Grandin's Website linked below)

www.templegrandin.com



http://leftbrainrightbrain.co.uk/2013/04/17/andrew-wakefield-dont-try-to-blame-me-for-the-results-of-what-i-said-and-did/


Original Blog Post from "Vaccines Not Associated With Autism" on 3/30/13:

 
The headline provided by the CDC, in the linked article below, specific to the described study states: "Vaccines not associated with Autism".

Regressive Autism is the only significant subgroup of autism that is the topic of parental observation of concern with vaccines, in the broad autism spectrum and the much broader autism phenotype.

http://www.cdc.gov/vaccinesafety/Concerns/Autism/antigens.html 

This study did not prove there was no association of vaccines with Autism. Specific to the vaccine concern and regressive autism, what it did provide evidence for, as quoted from the article, was this:

"Children with ASD with regression (the loss of developmental skills during the second year of life) did not receive an increased number of vaccine antigens when compared to children without ASD with regression."

This was only an analysis of regressive Autism as defined in the loss of developmental skills during the second year of life, which may have a number of different underlying contributing factors depending on the type of regression.

The regression was not defined specific to loss of language skills, so it is difficult to assess the specific characteristics and severity of the regression, in the sample of 49 children studied. A similar limitation was addressed by Matt Carey, in 2009, in the LBRB blog linked below when an association of Mitochondrial disease, fever, and Regressive Autism was suggested in research. In that study, greater detail was provided in how Regressive Autism was defined than the CDC topic study.
 
http://leftbrainrightbrain.co.uk/2009/09/24/fever-plus-mitochondrial-disease-could-be-risk-factors-for-autistic-regression/
 
Regressive Autism includes a spectrum of specific symptoms and differing severity levels that were defined in the study. There are a number of potential contributing factors for regression.

For one, Hyperlexia is associated with regression in language, and that general condition is estimated in about 5 to 10% of cases of Autism. Another potential contributing factor of risk for regressive Autism is abnormal brain growth associated specific to males with Autistic Disorder.

It is not clear what the direct causal factors are in any of these conditions but there is growing evidence for identified associations that may play a role as contributing factors of risk. What is known about vaccines and identified in the link below, by the CDC, is that there is a risk of fever severe enough to cause seizures in about one out of every 3000 that are vaccinated.

http://www.cdc.gov/vaccines/pubs/vis/downloads/vis-mmr.pdf

There is recent research, as linked below, that seizures, language and motor development in Autism are potentially associated and linked in genetic mutations in duplications of chromosome 15q11-q13, in 1 to 3% of spectrum disorders.

http://www.sciencedaily.com/releases/2013/03/130326101532.htm

One can consider that Autistic Disorder, alone, is currently defined very loosely at this point in time, where 2027 potential combinations of behavioral impairments and/or developmental delays technically could result in a diagnosis where 2 people could be assessed with Autistic Disorder without any intersection of behavioral impairments.

http://crackingtheenigma.blogspot.com/2011/02/exactly-how-many-ways-are-there-to-get.html

It is beyond reason to suggest that one underlying factor could be responsible for Autistic Disorder, considering the complexity of how it is currently defined as a disorder. PDDNOS is currently defined loosely enough by DSMIV standards that a diagnostic tool used to assess PDDNOS in recent research conducted by Catherine Lord and associates, as described in the analysis in the link below, provides a suggestion of a potential misdiagnosis in up to 90% of those assessed in a "non-autistic" group of individuals studied.

http://crackingtheenigma.blogspot.com/2012/10/more-dsm-5-confusion.html

At this point in time, the DSMIV guidelines describe an Autism Spectrum of Disorders that could be associated with almost any factor, including being alive, at least per the diagnostic tool used in Lord's study. It has never been too early to suggest that Vaccines are not the definitive Cause of Autism.

However, it is much too early for the CDC to suggest that there is no association, from this very limited study and the research that has been done to this point. For whatever reason, as provided in research by the CDC, in one out of 3000 people vaccines trigger a side effect of high fevers and seizures. At this point, they do not have clear evidence for why it happens, but it happens.

This is a common issue in many side effects of pharmaceutical intervention. I suspect that if identical research was done in an attempt to disprove that seizures are associated with exposures to greater numbers of antigens from vaccines, that the results would be the same. However, if so, it would be incorrect to suggest that seizures are not associated with Vaccines. They happen. They just don't fully understand why.

It is rare that this happens, but it is also not well understood at all what the actual percentage of children with regressive autism that get severely ill after vaccines are. There is no way to objectively assess that other than a parental survey. However, in rare cases, some children do fall severely ill, and behavioral symptoms of Autism do become more noticeable leading to diagnosis. It happens. They just don't fully understand why.

The underlying factors of seizures cannot always be assessed in an individual. However, the symptoms can be measured by behavior or EEG, when there are no structural anomalies in neurology that can be assessed. There are no clues but behavior in many individuals currently assessed with behavioral impairments associated with ASD's.

At least up until this point, much of the problem in assessing what the causal/contributing factors are is poor diagnostic guidelines that have been used to define what Autism even is, as a neurodevelopmental behaviorally assessed condition.

With DSM5 standards and ICD11beta revision to date, Autism becomes a core behavioral impairment in reciprocal social communication. There is currently no one defined impairment that can be measured by either neurological or behavioral assessment that is core to all Autism Spectrum Disorders, in either DSMIV or ICD10 guidelines, so there can be no potential of one core definitive causal factor. Not even five. Not even 10.

As long as there is the potential of a contributing factor of seizures and potential brain damage, no matter what the underlying factor of the seizures may be, there is the potential of some association. However, at least at this point, per the research that exists, it does not appear to be a potential contributing factor in more than 1 to 3% of the spectrum.

That may not sound like many people but it could comprise 20 to 60K individuals currently estimated as diagnosed, under the loose criteria that exist now. The topic study does not come close to disproving that potential rare association, however small it may be, as a contributing factor.

As a comparative gravity of issue, there were about 7 people that participated in a flash blog that got the attention of a large charitable organization recently, per concern over how the organization describes people on the spectrum in a video about AAC. However, this article, in that same charitable entity's delivery of the research, as communicated here, received much greater amounts of outrage from parents that witnessed their children falling ill after vaccination with observation of greater behavioral impairments after that point. It happens. They don't clearly understand why.

Nevertheless, it understandably, still, is an issue of concern among those that witness this serious issue in their children, in rare cases when it happens. There might not be so much fear of government conspiracies, if the CDC could just state at this point they don't know why this happens as a potential side effect in rare cases after vaccinations. It is reported. It happens.
 
It is much more common than death following a vaccination but potentially less common than one out of 3000 severe fevers and seizures as a side effect of a vaccination. Additional effort at research addressing potential root associations such as genetic mutation, fever, seizures, mitochondrial disease and Autism could still provide additional answers.

However, at this point, a general assessment in a statement of no association by the CDC is not much more believable than a statement of definitive causation. At least, for the limited number of individuals that has witnessed increased observable impairments associated with Autism, happening in their children after vaccination.

It makes it sound like there are many people complaining about it if one limits their world to online resources, but the potential contributing audience, online, is one of global nature and millions of people. It is a similar issue as a couple of hundred people online taking offense at a compassionate portrayal in a video about AAC.

In the real world, it is not on the radar for most people. There are more people listening to the anti-vaccine rhetoric of Alex Jones in the US, than has been attributed to people like Jenny McCarthy. However, in the US, the CDC is doing a great job of promoting what is the overall benefit of vaccines as a lifesaving effort, as the US retains levels close to the highest it has had in the past in "Herd Immunity" in the population at about 95%.

Religious waivers are still the greatest area of refusal to vaccinate other than medical reasons. This is one area, overall, in the US, per society adherence to the medical model of disability, in advantage in keeping the population healthy. The US was hardly phased by the Wakefield Vaccine/Autism research, whereas in Europe there was a substantial causal effect associated lowering the assessed vaccination rates below "herd immunity" in 80-percentile territory.



For anyone that made it this far, in this compiling of data, in three of my blog posts here is an additional avenue of potential interest. :)


The Autism Research Scientist that writes in the Blog linked below provides a virtual "Goldmine" of resources addressing the Co-morbid conditions associated with what is currently described and defined as the Autism Spectrum under DSMIV guidelines.

In regard to GI issues and Autism, and all the research that is coming out now, that is farther removed from the "vaccine controversies", this Autism Research Scientist's post linked here and the comments on it, provide an excellent overview of the state of science on this issue of GI difficulties and Autism, leaving the "vaccine controversies" in the dust, so to speak.

All of the blogs he lists on his blogroll are worth taking a look at when one who is interested in this kind of science, has the time.

http://questioning-answers.blogspot.co.uk/2013/03/gastrointestinal-mucosal-molecular-profile-autism.html




Autism, the Internet and "Ideological First Identity", a Collection of Thoughts:

http://katiemiaaghogday.blogspot.com/2013/05/autism-internet-and-ideological-first.html

"AutisticS Peeks!"


It's Good

to Hear

ya
:)!
*

(:@@
@:)
!*


AS
P:
Autistic Spectrum
Perception

and

Perspective

Update: "Vaccines Not Associated With Autism"

Update on 4/21/13:

There is a very interesting discussion in the comments section of the Left Brain Right Brain, LBRB website, linked below, in a topic  where Matt Carey went through the historical element of this Vaccine Controversy along with the expression of disgust that exists among some people, associated with Andrew Wakefield and the recent outbreak of Measles in Europe.

There is good information in that discussion for anyone who may be considering Temple Grandin's recent recommendation on her website, in consideration of a delay in MMR vaccination to age 5, if there are familial vulnerabilities that Grandin identifies on her website, in what looks like a quote from her upcoming book, "The Autistic Brain". 

I support what I see as reasonable aspects of her concerns, in the comments section of the discussion linked below; however, in the discussion, I provide the evidence that I am able to locate and link, which still leans heavily toward the benefit of vaccines over the cost of potential rare side effects, even if some of the general vulnerabilities of neurology and health that Grandin identifies, exists per family history. 

My personal opinion that continues as it has been the same in the past, is that only a physician is qualified to determine what type of Health Vulnerability in each unique case is worthy of consideration on a decision whether or not to vaccinate. 

Where there is no health vulnerability assessed by a physician, all the available evidence that exists shows that the benefits of vaccination greatly outweigh the potential costs in risk of side effects that have been studied, identified, and assigned statistical risk in percentage, updated in 2012, as detailed in the discussion, linked below from the LBRB website.

I appreciate Matt Carey, allowing me to participate in the discussion, as a relative Layman on these issues, whereas some of the other individuals discussing the issue appear to have been focused on it for years. 

I do not share the same level of emotional investment that some of the other people in the comments express; however, on the other hand, I am not versed in the level of detail some others have by memory, so it is a research project for me in real time, where I stumble on some of the "vaccine related jargon" that I correct in my comments in the discussion.

In addition, Temple Grandin's website is linked below for those who wish to review the comment that I referenced from her, on that website.

www.templegrandin.com



http://leftbrainrightbrain.co.uk/2013/04/17/andrew-wakefield-dont-try-to-blame-me-for-the-results-of-what-i-said-and-did/

Original Blog Post from "Vaccines Not Associated With Autism" on 3/30/13:

 
The headline provided by the CDC, in the linked article below, specific to the described study states: "Vaccines not associated with Autism".

Regressive Autism is the only significant subgroup of autism that is the topic of parental observation of concern with vaccines, in the broad autism spectrum and the much broader autism phenotype.

http://www.cdc.gov/vaccinesafety/Concerns/Autism/antigens.html 

This study did not prove there was no association of vaccines with Autism. Specific to the vaccine concern and regressive autism, what it did provide evidence for, as quoted from the article, was this:

"Children with ASD with regression (the loss of developmental skills during the second year of life) did not receive an increased number of vaccine antigens when compared to children without ASD with regression."

This was only an analysis of regressive Autism as defined in the loss of developmental skills during the second year of life, which may have a number of different underlying contributing factors depending on the type of regression.

The regression was not defined specific to loss of language skills, so it is difficult to assess the specific characteristics and severity of the regression, in the sample of 49 children studied. A similar limitation was addressed by Matt Carey, in 2009, in the LBRB blog linked below when an association of Mitochondrial disease, fever, and Regressive Autism was suggested in research. In that study, greater detail was provided in how Regressive Autism was defined than the CDC topic study.
 
http://leftbrainrightbrain.co.uk/2009/09/24/fever-plus-mitochondrial-disease-could-be-risk-factors-for-autistic-regression/
 
Regressive Autism includes a spectrum of specific symptoms and differing severity levels that were defined in the study. There are a number of potential contributing factors for regression.

For one, Hyperlexia is associated with regression in language, and that general condition is estimated in about 5 to 10% of cases of Autism. Another potential contributing factor of risk for regressive Autism is abnormal brain growth associated specific to males with Autistic Disorder.

It is not clear what the direct causal factors are in any of these conditions but there is growing evidence for identified associations that may play a role as contributing factors of risk. What is known about vaccines and identified in the link below, by the CDC, is that there is a risk of fever severe enough to cause seizures in about one out of every 3000 that are vaccinated.

http://www.cdc.gov/vaccines/pubs/vis/downloads/vis-mmr.pdf

There is recent research, as linked below, that seizures, language and motor development in Autism are potentially associated and linked in genetic mutations in duplications of chromosome 15q11-q13, in 1 to 3% of spectrum disorders.

http://www.sciencedaily.com/releases/2013/03/130326101532.htm

One can consider that Autistic Disorder, alone, is currently defined very loosely at this point in time, where 2027 potential combinations of behavioral impairments and/or developmental delays technically could result in a diagnosis where 2 people could be assessed with Autistic Disorder without any intersection of behavioral impairments.

http://crackingtheenigma.blogspot.com/2011/02/exactly-how-many-ways-are-there-to-get.html

It is beyond reason to suggest that one underlying factor could be responsible for Autistic Disorder, considering the complexity of how it is currently defined as a disorder. PDDNOS is currently defined loosely enough by DSMIV standards that a diagnostic tool used to assess PDDNOS in recent research conducted by Catherine Lord and associates, as described in the analysis in the link below, provides a suggestion of a potential misdiagnosis in up to 90% of those assessed in a "non-autistic" group of individuals studied.

http://crackingtheenigma.blogspot.com/2012/10/more-dsm-5-confusion.html

At this point in time, the DSMIV guidelines describe an Autism Spectrum of Disorders that could be associated with almost any factor, including being alive, at least per the diagnostic tool used in Lord's study. It has never been too early to suggest that Vaccines are not the definitive Cause of Autism.

However, it is much too early for the CDC to suggest that there is no association, from this very limited study and the research that has been done to this point. For whatever reason, as provided in research by the CDC, in one out of 3000 people vaccines trigger a side effect of high fevers and seizures. At this point, they do not have clear evidence for why it happens, but it happens.

This is a common issue in many side effects of pharmaceutical intervention. I suspect that if identical research was done in an attempt to disprove that seizures are associated with exposures to greater numbers of antigens from vaccines, that the results would be the same. However, if so, it would be incorrect to suggest that seizures are not associated with Vaccines. They happen. They just don't fully understand why.

It is rare that this happens, but it is also not well understood at all what the actual percentage of children with regressive autism that get severely ill after vaccines are. There is no way to objectively assess that other than a parental survey. However, in rare cases, some children do fall severely ill, and behavioral symptoms of Autism do become more noticeable leading to diagnosis. It happens. They just don't fully understand why.

The underlying factors of seizures cannot always be assessed in an individual. However, the symptoms can be measured by behavior or EEG, when there are no structural anomalies in neurology that can be assessed. There are no clues but behavior in many individuals currently assessed with behavioral impairments associated with ASD's.

At least up until this point, much of the problem in assessing what the causal/contributing factors are is poor diagnostic guidelines that have been used to define what Autism even is, as a neurodevelopmental behaviorally assessed condition.

With DSM5 standards and ICD11beta revision to date, Autism becomes a core behavioral impairment in reciprocal social communication. There is currently no one defined impairment that can be measured by either neurological or behavioral assessment that is core to all Autism Spectrum Disorders, in either DSMIV or ICD10 guidelines, so there can be no potential of one core definitive causal factor. Not even five. Not even 10.

As long as there is the potential of a contributing factor of seizures and potential brain damage, no matter what the underlying factor of the seizures may be, there is the potential of some association. However, at least at this point, per the research that exists, it does not appear to be a potential contributing factor in more than 1 to 3% of the spectrum.

That may not sound like many people but it could comprise 20 to 60K individuals currently estimated as diagnosed, under the loose criteria that exist now. The topic study does not come close to disproving that potential rare association, however small it may be, as a contributing factor.

As a comparative gravity of issue, there were about 7 people that participated in a flash blog that got the attention of a large charitable organization recently, per concern over how the organization describes people on the spectrum in a video about AAC. However, this article, in that same charitable entity's delivery of the research, as communicated here, received much greater amounts of outrage from parents that witnessed their children falling ill after vaccination with observation of greater behavioral impairments after that point. It happens. They don't clearly understand why.

Nevertheless, it understandably, still, is an issue of concern among those that witness this serious issue in their children, in rare cases when it happens. There might not be so much fear of government conspiracies, if the CDC could just state at this point they don't know why this happens as a potential side effect in rare cases after vaccinations. It is reported. It happens.
 
It is much more common than death following a vaccination but potentially less common than one out of 3000 severe fevers and seizures as a side effect of a vaccination. Additional effort at research addressing potential root associations such as genetic mutation, fever, seizures, mitochondrial disease and Autism could still provide additional answers.

However, at this point, a general assessment in a statement of no association by the CDC is not much more believable than a statement of definitive causation. At least, for the limited number of individuals that has witnessed increased observable impairments associated with Autism, happening in their children after vaccination.

It makes it sound like there are many people complaining about it if one limits their world to online resources, but the potential contributing audience, online, is one of global nature and millions of people. It is a similar issue as a couple of hundred people online taking offense at a compassionate portrayal in a video about AAC.

In the real world, it is not on the radar for most people. There are more people listening to the anti-vaccine rhetoric of Alex Jones in the US, than has been attributed to people like Jenny McCarthy. However, in the US, the CDC is doing a great job of promoting what is the overall benefit of vaccines as a lifesaving effort, as the US retains levels close to the highest it has had in the past in "Herd Immunity" in the population at about 95%.

Religious waivers are still the greatest area of refusal to vaccinate other than medical reasons. This is one area, overall, in the US, per society adherence to the medical model of disability, in advantage in keeping the population healthy. The US was hardly phased by the Wakefield Vaccine/Autism research, whereas in Europe there was a substantial causal effect associated lowering the assessed vaccination rates below "herd immunity" in 80-percentile territory.

For anyone that made it this far, in this compiling of data, in two of my blog posts here is an additional avenue of potential interest. :)


The Autism Research Scientist that writes in the Blog linked below provides a virtual "Goldmine" of resources addressing the Co-morbid conditions associated with what is currently described and defined as the Autism Spectrum under DSMIV guidelines.

In regard to GI issues and Autism, and all the research that is coming out now, that is farther removed from the "vaccine controversies", this Autism Research Scientist's post linked here and the comments on it, provide an excellent overview of the state of science on this issue of GI difficulties and Autism, leaving the "vaccine controversies" in the dust, so to speak.

All of the blogs he lists on his blogroll are worth taking a look at when one who is interested in this kind of science, has the time.

http://questioning-answers.blogspot.co.uk/2013/03/gastrointestinal-mucosal-molecular-profile-autism.html



Autism, the Internet and "Ideological First Identity", a Collection of Thoughts:

http://katiemiaaghogday.blogspot.com/2013/05/autism-internet-and-ideological-first.html

"AutisticS Peeks!"


It's Good

to Hear

ya
:)!
*

(:@@
@:)
!*



AS
P:
Autistic Spectrum
Perception

and

Perspective